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One of My Nemeses

October 17, 2008

One of my nemeses, infertility grief, has reared its head lately.

And it isn’t all to do with adoption-related things: like having to spend lots of money (although it is much less than many people spend) or waiting for someone to decide to place their baby with us.

I noticed it a couple weeks ago, when I read the blog of one of T’s former co-workers, but also our friend, who is a natural childbirth advocate, a doula and an aspiring midwife.  Granted, I don’t read her blog very often for that very reason but every now and then, I’ll click on it to see what she is up to, since they moved away.  She writes about the experiences of pregnancy for herself, for others (with their permission), making choices and the intimacy of childbirth.  I thought about how much I long to experience the intimacy of birth, sharing in those moments with T.  Even if we were to be in the room when one of our children is born, at that moment, it won’t be OUR child until paperwork is signed.

Then I noticed the feeling again, when I saw, on facebook, PH tagged in a photo of someone who had just had a baby.  I thought he’s my doctor, I know this is his FAVORITE thing about being a doctor, and yet, it is an experience I won’t have with him. 

Yes, I can have the experience of motherhood, of mothering a child from hours old to adulthood.  I can have the experience of loving a child so much I can’t even imagine how I could possibly love her any more, and then, I do.

Yes, I have had other different experiences with my doctor.

And yes, I have much to be thankful for in terms of my health, my life, my family, my faith.

But I’m realizing that while I can resolve most of my feelings about infertility, I can’t make it disappear forever.  Every now and then, it is going to rear its ugly head and I just have to manage the best that I can.

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Adopting Again: Waiting

October 15, 2008

Waiting is hard.  It has only been three months and I am surprised at how much anxiety I feel about the wait because I know it could be a long time.  We waited almost exactly two years from the time our homestudy was first completed for Widget’s placement, and it had been almost exactly two years from our last IVF cycle when we completed our homestudy, so four years, no, five years because our first visit to the reproductive endocrinologist was almost exactly a year before we had our last cycle, from feeling ready to be parents to actually becoming parents.

Sometimes I think we waited for so long last time, we ought to be placed quickly this time but I know it doesn’t work like that.  Plus our agency is small and focused more on helping moms/couples with unexpected pregnancies than channeling them into to placing, so odds are the wait will be long.

And with all the news about the economy, I keep wondering if this is the right time, the right thing to do with the money we have set aside….

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Adopting again: Proof that we chose the right agency

October 3, 2008

Wednesday night we had a support group meeting with our adoption agency.  Because it was just T & I and one other couple who is just starting to investigate adoption, mostly we shared about our experiences with open adoption: what is easy, what is hard, etc.  After that we were discussing what has been happening with the agency in the last few months and she updated us on the number of expectant parents she has been working with.  One of the couples she is working with is currently raising a child and they came to her because they are considering making an adoption plan for their second child.  One of the questions she asked them was,”If you were to get $250,000, would you be here talking to me about making an adoption plan?”  Both of them looked at her and shook their head no.   When she relayed this information to us, she said that she really felt adoption was NOT in the best interest of this child or family since finances seem to be the only reason they are considering it.  And that, dear friends, is why we chose to work with her again, even though her agency is small and has low placement numbers.

And now I’m going to put a plug in for the agency because funds are low: not a lot of placements means not a lot of income from adoptive parent fees  :)

if anyone is interested in donating to her agency, it is non-profit 501(c)(3) charitable organization.  We can’t donate right now because we are part of the waiting pool.  Let me know if you are interested, and I will put you in touch with her.

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Matching

September 30, 2008

Last night I went into the bathroom to get ready for bed and found this:

A short while later I noticed this:

and this:

Apparently, Widget decided to match her dollhouse furniture to our regular furniture :P

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Resigning myself

September 28, 2008

I have resigned myself to the idea that we will be living in this house longer than I had hoped, unless the financial/mortgage/housing market makes a complete 180 in the next year.  I just highly doubt we will be able to get a mortgage with the black mark of bankruptcy on our credit until we can MAYBE qualify for an FHA loan.  Plus most of our savings is tied up waiting for nextbaby and our adoption costs, so a decent down payment is a thing of the future for us.

I suppose it is a good thing financially since it costs us less per month to rent this house than we would pay in a mortgage with taxes and insurance, plus we don’t have to pay for big repairs- we just have to deal with the “take-their-time” methods of our landlords.

But it is hard to not own the house we are living in, to feel restricted in what we can and can’t do to improve the property or make it into our home.

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Ignoring politics

September 25, 2008

As the presidential election draws closer, I am ignoring politics- something a bit odd for a political science major, wouldn’t you think?

I’ve been disillusioned since the 2000 election when Al Gore lost the electoral college vote but won the popular election vote.

It took me until McCain picked his VP to decide who I’m voting for.  Now, I have no doubt even though I’m not totally thrilled with either choice.

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Why do I do this?

September 22, 2008

Periodically, I decide I need to google “Wilms’ Tumor survivor” and/or “childhood cancer survivor” and see if there is anything new I might want to know.  Nine times out of ten, it is all stuff I have read before.  But then there is the one time, like tonight, when apparently a new article published by the British Childhood Cancer Survivor Study has come out, stating, and I quote from the abstract,

“The overall risk of second primary neoplasms in survivors of Wilms’ tumour treated between 1940 and 1991 was substantial, and solid second tumours tended to develop in the irradiated tissue. Continued follow-up of these survivors is important to monitor such late effects of treatment. It is also important to evaluate the risk of second primary neoplasms following more recent lower radiation dose treatment practices.” 

Aliki J. Taylor, David L. Winter, Kathy Pritchard-Jones, et al. Second primary neoplasms in survivors of Wilms’ tumour - A population-based cohort study from the British Childhood Cancer Survivor Study. Int J Cancer. 2008;122(9):2085-2093

Now I’ve only been able to read the abstract and a couple of small article blurbs, so I don’t really know the impact of study with relation to my actual treatment.  I did send an e-mail my former nurse practitioner at the University of Michigan to see what she knows and if there is anything to be concerned about because I do fall into the category of years and I did have higher doses of radiation therapy to my entire abdomen, though I don’t know the difference between British treatment protocols and US treatment protocols.

So now I have something to think/worry about until I hear from her.  Honestly, I’m not totally freaking out, which would have been the case in the past, because I know that the likelihood of this having any impact on me is minimal but still I have to admit this is my primary fear-  that I will have cancer again.  Not Wilms’ again because it has been too long- just something new and potentially related to the treatment I received.

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I used it anyway

September 16, 2008

I ended up deciding to use the essay that woke me at 5 AM for the application.  I took out one part of a sentence and I added a paragraph to the end.  I was going to add more but then I decided if they can’t infer what the benefit of a grant towards our adoption costs would be from it, I’m not sure what they would want me to say.

The other essay I had written was fine.  It just felt a bit like a school paper.

Everything is now in, so wish me luck.  I’m not sure when they are planning to announce the grants/scholarships but I’ll be sure to let you all know what I find out.

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There is No Going Back, Only Forward from here

September 14, 2008

I woke up this morning, after about 4 hours of sleep, because I have to write an application essay for our grant application to the SAMFund (this time we are applying for adoption fees).  Now, I had written one which I sent to my sisters to be edited but for some reason, my mind was churning a different essay and I couldn’t fall back to sleep.  So I got up and this is what I wrote:

APPLICATION ESSAY

 

It is 5 AM.  The deadline is fast approaching.  All the rest of the paperwork is done- the financial information, our taxes, medical releases.  The easy stuff.  Done.  Most of it completed within days of hearing I could continue on in the application process.  Now, I sit and stare at the computer screen, wondering is it even possible to put words to the tumult of emotion that greets me when I reflect on my life as a cancer survivor?  How can I summarize the bittersweetness of the journey to motherhood I am on?

 

Do I write about the diagnosis of cancer my parents heard when I was five years old?  Hearing those words after weeks of unexplained fevers, lethargy, back pain.  We see a mass on her left kidney.  We think it is what is called Wilms’ Tumor.  You have to leave your other children and go, tomorrow, to the children’s hospital two hours away.  For treatment.  For surgery, chemotherapy, radiation.  You are about to enter a world, no parent, no person wants to be a part of but there is no other option if you want your child to live.  We go.  In a whirlwind, I have surgery, start chemotherapy, have my abdomen irradiated to rid it of cancerous cells.  There is no going back, only forward from here.

 

Or do I write about finding out at the age of 17, that yes, you have acute ovarian failure? And, no, there is no chance of pregnancy on your own or even with your own eggs.  They are gone.  Shriveled.   Dead from the radiation.  Maybe you can do in-vitro fertilization with donor eggs but we don’t know if even that will be successful.  After I’m home, I cry to my boyfriend, “what man would ever want a woman who knows she cannot have his children?”  In his 18-year-old way, he comforts me, tells me “Any guy who would leave you for that isn’t worth having.”  Three years later, we get married.  Three years after that, we attempt IVF with donor eggs, my older sister going through egg donation just so we could have a chance.  We try three times.  One embryo transfer.  Negative.  A second embryo transfer.  Negative.  A third and final transfer. And a final negative.  Our reproductive endocrinologist looks at us and says “There isn’t any more that we can do.  You should consider adoption.”  There is no going back, only forward from here.

 

Do I write about the depression that begins to envelop me?  The failure I felt about not even being able to become pregnant.  That I wouldn’t have gotten cancer if there was not something inherently wrong with me.  That maybe I wasn’t meant to be a mother, despite dreaming of it for as long as I could remember. An internal dialogue that repeats itself over and over for the next seven years.  My doctor puts me on antidepressants but, otherwise, I attempt to ignore it, push it away but it festers underneath.  I begin to lose my faith in God.  I tell myself, “There is no going back, only forward from here.”

 

Or do I write about beginning the adoption process?  We choose domestic infant adoption.  We want our child to have a connection to his or her birth family.  We choose an agency.  We save money for the fees.  We complete the homestudy.  Create our profile.  Wait. There is no going back, only forward from here.

 

A year later, we have feel the joy of being chosen.  But then, the devastation of a mother changing her mind.  Keeping her baby.  How did we come to love something we never really had?  It was a miscarriage but the baby still existed, just not in our lives.  With trepidation, we continue waiting.  Praying that, in the end, there would be a baby, a child for us to love and raise.  There is no going back, only forward from here.

 

A second year of waiting begins.  All around us, family, friends begin to announce pregnancies.  We wait.  We wonder, ”Will it ever be us?”  We decide to check out other adoption agencies and talk to a couple different ones.  Find one we like, one that needs families because it does not have enough.  Holding our breath, we switch.  And another phone call comes.  We’ve been chosen again.  We meet the mom and we wait.  Three weeks later, we are holding our daughter in our arms.  But what a juxtaposition of joy and grief.  The pain for our daughter’s birth mother is tangible.  The seed of love we have for our daughter has already been planted.  There is no going back, only forward from here.

 

Or do I write about the fact that for me, the love I have for my daughter and the joy of becoming a parent, does nothing to alleviate the depression hovering below the surface of my life?  It begins to creep out, to permeate my life.  But still I refuse to see.  Then when my daughter is eight months old, depression’s black hole sucks me in entirely.  I stumble through the days and nights, in tears, confused.  Shouldn’t I be happy?  I am a mother.  Isn’t this what I wanted?  Is there no going back? How do I go forward from here?

 

I talk to my family doctor.  He refers me to a counselor.  I go for a few sessions and quit.  I converse with my doctor for months by e-mail.  We talk about everything under the sun, including God.  He is in over his head but he invites me to his church, helps me rediscover God.  But still I am depressed.  Through his church, I connect with a new counselor and I change antidepressants, hoping that will help.  Instead, I fall further down.  I think about suicide.  I think too bad I didn’t die from cancer.  Life would be better without me.  In the midst of the swirl of suicidal thoughts, I cling to God.  I e-mailed my doctor.  Help. I’m scared.  I call my new counselor.  I am referred to a psychiatrist who checks me into the psychiatric unit of the hospital.  We change antidepressants again.  I begin to stabilize.  I check out of the hospital.  Then comes the hard work.  I see my counselor, my psychiatrist, my doctor regularly.  I begin to talk, to verbalize the internal discussion I have been having for the last seven years.  I connect with my counselor and he guides me through my emotions, thoughts, patterns from my childhood to the present.  I begin to really work on my grief and loss related to being a cancer survivor, the resulting infertility.  There is no going back, only forward from here.

 

Soon, between the new medication and the counseling, I find myself coming out of the depression.  Some days, it is like I see my life, my daughter, my family for the first time.  I remember what it is like to be happy, to have joy.  The depression begins to dissipate, not just get pushed away.  Two years and many long hours later, I can truly say it is gone.  I live each day, remembering that I beat cancer and depression.  There is no going back, only forward from here.

 

Now, it ends up that this doesn’t really work for the essay I need to write because there is no way to work the rest of the questions into this format.  So I think I will submit the original essay, but figured this was as good a place as any to share the other.

This after I said I don’t need this place as much any more :-P  

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I don’t need this as much

September 12, 2008

I came to this revelation earlier today when I was hemming and hawing since I hadn’t blogged about anything of substance in awhile.  But truth be told, I don’t need to.  I started this blog because I was trying to process a lot of emotions and figure out my internal thought processes regarding infertility, adoption, depression, childhood cancer survivorship, God.  I was never very good at journaling on paper but somehow, I took to blogging about everything.  Now, 2 years and 8 months later, the need is no longer there.

It is about stability from being on the right medications and going through good counseling in the last two years.  In fact, #5 and I scheduled my next appointment for eight weeks out with the comment that it was just to have something on the calendar but if I didn’t feel I needed to go, we could push it out further.  I’m basically on maintenance follow-up with him and with my psychiatrist.  There is no real need to see either of them, so we just check in periodically.  It is a good feeling :-P

I suspect as the adoption process for nextbaby evolves, I’ll go through periods of anxiety and stress, which will increase my need to sort things out, so there may be an upswing in posts. But I also feel completely different about who I am as a person this time around than I was when we started the process for Widget and after she came home, so we will see what happens.

I’m not going to totally stop blogging but I suspect posts will be few and far between for now.  Feel free to e-mail me at momtowidget at gmail.com if you have a sudden desire to know what is going on.  I’ll be happy to e-mail you back :-)